Sue and Ayla's Web Journal

Welcome to our online journal!

My hope through this journal is to help and educate people Perhaps you find yourself in a similiar situation and feel you are all alone. It is my hope that I can share my experiences with you and let you know that you are not alone. Perhaps you have no idea what Spina Bifida is and with the help of this site and the links available you will become knowledgeable. Perhaps you are just not aware of what a physically challenged person goes through on a daily basis that an able bodied person takes for granted because you are not touched personally. I hope that I'm able to shed some light on this for you.

However way you found yourself to our site.... Welcome!

Great Sites

Tag Board

Aunt Ann: Hey Ayla!I know your name is not spelled with an "s". Silly me! Just popped in to say "Hi"

and to send hugs to you and Mom from all of here in Oceansie, NY. Email me sometimes and we can exchange pictures!Love,Aunt Ann, Uncle Andy & Liz

Leia: I'll bet I know which book the name "Ayla" comes from :) My meowmie loves those books too :) She also has an ileostomy (sort of like a colostomy) since she was 10 years old so she knows what it's like to be really sick and unable to do 'normal' stuff as a kid too. Good luck to you and Ayla.

ayla: Hi!!!!!!! I have the same as you and i want to get to know you so when you get this will you E-mail me nice talkin to you ayla, bye

ayla: Hi!!!!!!!! I dont know you, but i will like to and i have the same name as you when you get this will you E-mail me and i will try to get back to you OH and i am 11 years old!! ayla bye

ayla: hi!!!!!!!! i dont know you, but i want you to know that i have the same name as you when you get this E-mail me and i will try to get back to you i want to meet you and your daughter ayla byebye

Aunt Ann: Darn no spell check! I know it's spelled "A Y L A" with no "s". My bad.

Aunt Ann: Hi Aylas!!! Uncle Andy and Liz say "Hi!" too. We can't wait to see both you and your mom again. We have a new dog and kitten in the family. It's sad to announce the the other 2 dogs we had have passed away. Anyway,hugs and kisses from us all!!

sole: hello ayla!!!!!

Tuesday, May 31st 2005

9:59 PM

My own medical issues to deal with

Mood: Tired

Recently found out that I have Lyme Disease.....not sure what else to say about that right now. I'm learning every day more and more about this disease, how it manifests, how it spreads, the different stages one goes through, and of course the various types of treatment and how controversial it seems to be. Sometimes I get very angry because I look at myself in the mirror and don't see anything different about me, yet try and do some of my regular every day stuff and feel wiped out after a few hours. The bodyaches, the join pain...not fun. I don't like feeling sluggish all the time, it bothers me. Being my own advocate and being proactive in my own healthcare seems to be what I need to do in order to get through this and be there for my daughter as well. Some days...all I do is sleep. Those are the days that I feel the worse, when it takes every bit of strength I have to get dressed and be ready for Ayla when she comes home from school.

1 Feedback.

Posted by Christine:

My daughter had Lyme's disease too..she contracted it when she was 2, they thought they took care of it with antibiotics but now she has recurrances.. not fun. :-(

Tuesday, July 19th 2005 @ 10:37 PM

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